Series: My Success By 6 Experiment #3
When Luke was not quite 18 months old, I began to have concerns about his speech development. I consulted family members, friends, co-workers, and expert volunteers for their opinions. Of course, by asking so many people I got quite a range of advice. There were a lot of folks who thought that I had very high expectations for Luke, and that I should wait until he was at least two before I really worried. Others thought that as his mom I knew best and it couldn’t hurt to have an evaluation done. In the end, I decided that I did know my child better than anyone else in the world. If he didn’t qualify for services then I would know that I had been overreacting but wouldn’t have worried that I hadn’t done enough for my son.
So, I spoke with a friend who works for First Steps, and she guided me through the process. It was actually pretty easy. I made the referral for Luke. Within a few days, the Initial Service Coordinator (ISC) assigned to Luke contacted me to set up a time for us to talk. She came to my office and asked me several questions about Luke and we set up a time for his evaluation. The evaluator came to our home. She played with Luke, asked us more questions about our observations of him and made notations on the forms she was using. Based on her findings, he did qualify for speech services. We then chose a Primary Service Coordinator (PSC) who helped us choose a speech therapist.
Luke’s speech therapist would see him at a variety of locations based on her schedule and what worked for us. Sometimes she would see him at his child care center, sometimes at our house, and sometimes at one of his grandmothers’ homes. It was so nice to have his therapy at places that he was used to and comfortable with. His therapist was kind and offered us tips about what we could do with Luke on a day-to-day basis to encourage his speech development.
When enrolled in First Steps, the PSC and therapists periodically review the established Individual Family Service Plan (IFSP). At our second review, the speech therapist shared that she thought that Luke might have some sensory issues and recommended that we have an evaluation to see if Luke qualified for Occupational Therapy. I was a little shocked and admittedly devastated. I had been able to accept his need for speech that was seemingly common, but a sensory integration disorder? That I wasn’t prepared for.
I didn’t understand. This was my child. The child I read to everyday from the time he was in the womb, the child I played, sang and danced with, my sweet boy. I never thought that my child would be the recipient of services. In my job I help to make sure that services are available to those in need. I am not used to being the one in need. So, I began to look into Sensory Integration Dysfunction. A lot of the descriptions that I read on the web and in recommended books did seem to fit my sweet boy. So, I knew what I had to do. If he had something going on that he needed help with, it was my responsibility to make sure that he got the help that he needed. Even if it meant that my expectations had to change.
We had further evaluation and he qualified for Occupational Therapy. Luke’s experience with OT was amazing. In my opinion, it actually helped with his speech more than the speech therapy alone had. This “diagnosis” wasn’t the end of the world. It was a way for Luke to learn to manage some of his challenges. It was a way for him to be more comfortable in the world.
At the beginning of April, my not-so-little Luke will turn three. I can’t believe how quickly the time has gone by. His third birthday will also mark the end of his time with First Steps. He has come a long way. I now understand almost all of what he is saying, although he doesn’t use all of the correct sounds. He transitions easily from one activity to another, and is a well-adjusted, normal little boy.
Based on my conversations with his therapists, his PSC and my contacts at JCPS I have decided to let Luke take the summer off from therapy. He would likely only qualify for speech through the school system and the school year is coming to a close. So, we’re going to enroll in swim lessons, continue going to Gymboree and work on his articulation during our normal conversations. We’ll see how he’s doing in September. If I think that Luke still needs an extra boost in his language development, we’ll seek an evaluation through the school system or look into private services. I will always make sure that he has everything that he needs to be the best person that he can be.



